2019 Falmouth Road Race benefiting the Sturge-Weber Foundation
August 18, 2019
In just over 2 weeks, I will be hitting the streets of Falmouth to run my 3rd Falmouth Road Race to benefit the Sturge-Weber Foundation (SWF). This is the 10th and final year the SWF Team will be running the race and I am honored to help them reach their 10 year cumulitive goal of $1,000,000.
I run this race for our friend Ryan McIntyre, a 14 year old boy who has SWS. Sturge-Weber is a rare congeital condition characterized by a facial port-wine birthmark and varying degrees of glaucoma and/or seizures. I was fortunate enough to be introduced to Ryan's mother, Pam McIntyre, 5 years ago. I cherish her friendship and admire her abilty to advocate for Ryan and so many other children like him.
Thank you for helping me reach my fundraising goal! Every dollar helps to make a difference in the lives of children with SWS and their families.
The Sturge-Weber Foundation is a non-profit organization with a mission of improving the quality of life for people with SWS through collaborative education, advocacy, research, and support. SWF has dedicated 30 plus years to sponsoring educational programs and funding research (including contributing to the ground-breaking discovery of the GNAQ gene that causes SWS) to help improve treatments, and ultimately find a cure.
To find out more about SWS and the Sturge-Weber Foundation, visit our site at www.sturge-weber.org.