“Twin A is normal. Twin B has Trisomy 21. Do you want to know gender? They are both girls.”
I could. not. breathe.
Like many new mothers of children with special needs, I grieved the loss of a vision, assigned blame for unchartered challenges, and slowly adjusted to the new road ahead. Then, I discovered the actual person who is my special child and started to see everything that she is instead of everything she is not, and that she certainly never did anything to me worth blaming her for... other than changing my life for the better.
I have three spunky, witty, adorable children: Sammy (Twin A), Kit (Twin B), and Teddy. Kit has Trisomy 21, which is Down Syndrome, and a rare lymphatic malformation. Kit made me a Steel Magnolia Mom.
Anyone who has met Kit knows she is a real piece of work – a masterful piece of artwork, full of personality that shines! But raising her is far from easy. The road can be bumpy. It is easy to slip, fall, focus on the negative and begin the blame game again. I often still have to make a deliberate choice — to choose joy, to choose to celebrate small wins, to choose to see the beauty... because wow, the beauty is extraordinary and not worth missing. It is certainly easier to do that at times when plugged into a community of women who can relate and share resources. That is Steel Magnolia Moms.
Steel Magnolia Moms is an unmatched, necessary organization. Our growth has been explosive because the need is so great. We can and want to keep growing! I am running the Ragnar Relay from San Francisco to Napa Valley because there are mommas who have been knocked completely off their feet, whose worlds have been turned upside down, who are questioning their faith and beliefs, who have lost their optimism and cannot see the light at the end of the tunnel. There are also mommas who have been there, who have learned from mistakes and can share new ideas, whose faiths and beliefs have changed and deepened, who are currently at a peak not a valley, who see nothing but the colorful, gorgeous, perfectly clear view ahead. And there are mommas at every step in between, just trying to find the right footing. I want to reach and connect these moms along their special journey like Steel Magnolia Moms reached me.
And so I choose to RUN! Will you join me and support our mission?
*Donors may receive a free hug from Kit – a hug you’ll never forget!