Help us support kids with epidermolysis bullosa (EB) during COVID 19 pandemic.
Help us support kids with epidermolysis bullosa (EB) during this COVID-19 pandemic.Epidermolysis Bullosa (EB) is a rare and serious, non-contagious, genetic illness, for which no cure has been found. It is characterized by acute sensitivity in the skin and mucosal membranes. Patients with EB develop blisters and sores in response to minor types of skin trauma - a mere touch upon or pressure to their skin, or even just changes in weather. These lesions can be both external and internal and can appear inside the mouth, in the esophagus and the rectum. Patients with EB are affectionately referred to as “butterflies,” in reference to their fragile skin.
It is our mission at SOS EB Kids to ease the constant, daily struggle of patients with EB and their families by raising funds to purchase the wound care supplies required for the expensive treatment. BUT NOW we need to send them even more supplies and, in addition, we need to assist them with specific items to protect them against COVID-19.
We kindly ask that you join us in supporting the 70 children with EB assisted by SOS EB Kids. Your gift will help provide protection equipment, as well as more supplements to strenghten their delicate health. Help keep our butterflies safe and healthy so that they can get through this pandemic.
To learn more visit: www.sosebkids.org