Hi, my name is Skylar Grossberg. I am a patient myself with telomere syndrome. My dads side of the family has been deeply affected by telomere syndrome and have lost many of them to it, including my dad. Once I go to the diagnosis I was scared and all I wanted to do was help myself and other people. I am hoping with the money raised it can go to more research and over time help come up with a cure. The past few years more research continues to be conducted and doctors are learning new things everyday. So I want to make sure that they get to continue to research this syndrome that is very important to me and my family.