The annual Systemic JIA family conference brings together patients, parents, physicians, and researchers to change the course of this life-threatening autoimflammatory condition.
Families participate in clinical research and learn from one another. Navigating the ups and downs of refractory SJIA is emotionally draining and very lonely at times. This conference puts kids and parents with a common struggle together as it truly takes a village to raise these children.
The Systemic JIA Foundation works to keep the out-of-pocket cost for families low by covering many of the costs for the conference. The foundation also coordinates research appoinments and second opinion consultations for children who are struggling with their current treatment.
Every dollar raised in this campaign will help patients, parents, and physicians collaborate and connect at this annual conference for the mutual well-being of their children.