Siyona is a beautiful little girl born on 12th September 2019 in Bhairahawa, Nepal. Her parents Sandeep and Aleena. It was at 4 months old that her parents noticed she was not progressing properly. It took until her 6th month for her parents to learn that Siyona has a devastating genetic disease call Spinal Muscular Atrophy. It is a progressive neuromuscular disease that gradual weakens the muscles of limbs, swallowing and breathing. You can imagine the outcome. She cannot sit up, walk or stand. And without this cure, as her disease progresses, she will not be able to eat and drink and finally not able to breathe on her own. Without timely treatment, most of the infants with severe form of SMA will be on permanent ventillator within a year of life and rarely survive beyond two years. Her only path is through gene therapy drug called Zolgensma which costs nearly 2.1 million USD and her family cannot afford the drug that will save her life! We are looking for support from organizations and individual donors from all around the world to help in Siyona’s treatment. She deserves the chance to smile, stand and run and fulfill her dreams. Please help us to spread the word and please donate to save Siyona's life!