When I was 4 years old I was diagnosed with the genetic lung disease, Cystic Fibrosis, and I was told that I wouldn't live past the age of 8. When I was 18 years old I was diagnosed with non-hodgkins lymphoma, a form of cancer, and went through four months of chemotherapy and one month of radiation.
I am now 32 years old and have achieved milestones that I never dreamed possible. I am a wife, a mother to our 4 year-old-son, Leo (who does not have CF), a college graduate, a marathon runner, cancer survivor and cystic fibrosis fighter.
As an 'old' person in the cystic fibrosis world I have seen drastic changes over the years and in just the last few years I have seen the biggest progression towards new treatments/therapies that are being considered the building blocks to a cure.
People with CF are now living longer and my generation of people living with the disease are learning to navigate and cope with the new health challenges that we didn't know existed previously because we weren't living long enough. Your donations help fund research for medications that lengthen and help stall the progressive nature of the disease. Hopefully, in my lifetime there will even be a cure!
Every year I am astounded by my incredible Lost Lake team of people who come together to have fun, work hard and hike mountains to find a cure for cystic fibrosis. The support from my husband, family and team really make this experience very humbling and special.
Every dollar brings us closer to a cure for CF and I am forever grateful to all who fight and raise awareness with me in pursuit for a cure.
At the end of the day I have dreams and aspirations to watch my son grow up, grow old with my husband and meet my future grandchildren. There are no excuses in my world and I will not give up until a cure is found.
You can follow my story on my blog:
If you have time take a moment to watch a video about how family and running has impacted my life: