Hello! My name is Remi Schandel, I was born in October of 2018 on Long Island, NY.
I was diagnosed with CF at birth and I live nothing short of an amazing life! I live with my mom, dad, and 3 bulldogs... and my family and friends are always visiting!
Although I can’t express through words right now how I feel or what it is like living with CF, I do my best through ooos and ahhs, smiles and laughs, facial expressions, and wiggling around. My parents are huge advocates for me and I hope you join us and Team Boomer in the fight for a cure.
We will be running (I'll be cheering and waiting at the finish line!) in the Run to Breathe NYC and we hope you can join us!
Remi is an amazing little girl and so full of life. She is growing up so quickly and soon enough will be running around on her own!
We are hoping to spread awareness and help people understand CF and how it can affect people in millions of ways. We dont want Remi to be defined by the disease, but we want to do everything we can to help her and all of those affected by it!
cff.org is great for understanding what CF is. Please check it out!
On behalf of Remi and all of those in the CF community, we ask you to join our team and Team Boomer to raise awareness, funds, and a fight for a cure.
Ashley and Eric Schandel