There’s nothing better than running along beautiful Lake Superior in Grandma’s Marathon. This year I am running the half marathon on June 22nd and once again fundraising with Team Carole to find a cure for Scleroderma. My friend Carole Berg lost her battle with Scleroderma in 2016. Her husband Kevin continues to be tenacious about keeping her memory alive and raising money to find a cure for this devastating disease.
I serve on the Scleroderma Foundation Minnesota Chapter board of directors and cross paths pretty regularly with scleroderma patients. In fact, half the Board is afflicted with the disease. The degree of impact of this disease can range from mild to debilitating. I see all variations. I feel fortunate I can still run. Many/most patients cannot. If Carole could have channeled her strength through running, she would have won Grandma’s. She was tough as nails and very discreet about all the issues she was having. But she carried on attempting to live life to the fullest. I miss her!
June is Scleroderma awareness month so this is my small contribution to the cause. Scleroderma is a Greek word translating to hard skin. It is an autoimmune disease that overproduces collagen, for no known reason, which calcifies in parts of the body/connective tissue. It can wreak havoc on lungs, kidneys, GI internally, for example, and of course the major organ externally – skin. There is no cause and therefore no cure.
I would appreciate your support. You can donate to the cause with the handy donate button. All dollars raised will be directed toward research to find a cure. I know everyone can say that, but the National Institutes of Health doesn’t designate nearly enough research dollars to this rare disease, so we must do a lot on our own. If you wish to mail a check, please make it out to: Scleroderma Foundation and mail to 707 Parkway Ave S, Lanesboro, MN 55949.
Thanks from the bottom of my heart. Wish me luck!