I will be dedicating my walk to my cousin Duane Bachman who died this past week from Sepsis brought on from the effects of Myeloma which he had lived with for many years, but only finally diagnosed about a year ago.
June 1st: My Update:
My SPEP lab results of my M spike did reach 500 g/L (or 0.5 g/dL) which is the level of being refractory to the current maintenance meds. I am now in relapse.
I'm being tested and restaged and will start over with a new treatment line.
This time there are many new treatments....
....because of all the RESEARCH that has occurred....
....thanks in part to all of YOU who support ....
....fundraisers like MMORE and DEFEAT MYELOMA....
Three years ago I was diagnosed with multiple myeloma, an incurable, but treatable, bone marrow cancer that leaves tumors and lesions in the bones and impacts the body's entire immune system. It took the doctors months to diagnose it. The aches and pains symptoms I had sounded like usual suspects to them. Doctors are trained that if you hear hoofbeats think horses, not zebras. But zebras it was for me. I was fortunate not to have any fractures or kidney damage, but did have anemia and multiple areas of lesions within my bones.
I’ve been through "induction" chemo to get it under control, a stem cell transplant which terrified all of us but got my numbers down to too small to count, then maintenance chemo to keep my good response from lapsing.
Then this past summer we found the secondary cancer likely caused by the chemo meds. So I had to go off the maintenance meds to have three surgeries to remove and repair a melanoma in situ on my nose.
By the time I got back on the maintenance meds, the myeloma was showing up again. But this time it is not responding well.
I await this week’s lab results having already met with my three different specialists to explore the next possible steps in full treatment to knock this back down.
WHICH BRINGS ME TO THE POINT HERE -- RESEARCH!
We discussed all the various options and what each of them have shown in all the research that has been done. If it weren’t for these studies giving us the pros and cons, the side effects, the good effects, and the statistics on progression free survival, we couldn’t make the best treatment decision for my particular strain of Myeloma.
AND MY SECOND POINT IS THAT RESEARCH DOESN’T HAPPEN WITHOUT FUNDING.
Please consider joining me on my team either walking or running and fundraising with me, or donating to my team for research at Fred Hutchinson Cancer Center in Seattle.
With gratitude for family, friends, neighbors, my medical teams and providers, and many complete strangers who have supported us through these past three years.
SUNDAY JUNE 24TH - 9 AM - MAGNUSON PARK