Raylan has Syngap 1 a rare genetic mutation that presents with intractable epileps, severe development delays, and more. Raylan just had a Corpus Callosotomy a type of craniotomy in hopes to stop his seizures.
For years I have fought to get the answers he needs. I don't stop. Raylan deserves the best. He struggles every single day to even have the slightest bit of normal.
Want to join me in making a difference? I'm raising money to benefit Bridge the Gap - SYNGAP Education & Research Foundation, and any donation will help make an impact. Thanks in advance for your contribution to this cause that means so much to me.More information about Bridge the Gap - SYNGAP Education & Research Foundation: Our mission is to serve, educate and fund research for families coping with the effects of Synagp mutations. Our international outreach for Syngap children gathers critical information needed to drive research towards more immediate therapeutic solutions. Our goal is to improve the quality of life for people affected by Synagp, provide family support, accelerate research and raising awareness. For every family and every child with SYNGAP provides information that can guides us to a cure.