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Plunge for Elodie 2021

$204,921

Story

On July 15, 2016, our dear friend Emily's daughter Elodie was born with a rare genetic disorder called Epidermolysis Bullosa ("EB"). This devastating disease means that Elodie is missing a critical protein that helps bind the layers of the skin together, making her skin extremely fragile, and causing internal and external wounds. The only option to care for Elodie is through a twice-daily bandaging process that is both painful and extensive. Today, there are no cures or even treatments for this disease, and children face lives that are cut far too short. Yet even despite the suffering that she endures each day, Elodie is the sweetest and most adorable little girl in the world. She inspires us to fight each day to bring her - and other "Butterfly Children" - a much needed treatment. One day in the not so distant future, we envision a world free of EB, and we will continue to Plunge until that becomes a reality. We invite you to make a splash with us by taking the Virtual Plunge for Elodie, helping to spread the word about this event and cause, and by making a donation: every dollar makes a difference! 100% of donations directly benefit the EB Research Partnership, the largest non-profit dedicated to funding research aimed at treating and ultimately curing EB. 

To encourage your fundraising efforts, you'll receive incentives by hitting the following levels. Raise $2,500 to receive the full Plunge for Elodie kit!

$250 - Face Mask 

$500 - T-Shirt 

$1,000 - Sweatshirt

$2,500 - Beach Towel

 Get started by setting up your personal fundraising page by clicking the "Join" button above! Visit plungeforelodie.org for more information.

Posted by EB Research Partnership