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Pack the Palace for Jackson: Strength in Numbers to Find a Cure for RYR-1 Muscle Disease

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Pack the Palace for Jackson: Strength in Numbers to Find a Cure for RYR-1 Muscle Disease

Online registration has been closed. Additional registration will take place in person at the Palace tomorrow. Limited lanes are left, so please try to arrive around 1:00 pm if you have not pre registered to reserve a lane! If you are not able to bowl but still want to support the event, you can come to the Palace to purchase some of our delicious baked goods and raffle tickets for some of our amazing prizes. We hope to “Pack the Palace” and see you tomorrow!

Please help us "Pack the Palace" for Jackson and help raise money to find a cure for RYR-1 related muscle disease!  Jackson has a rare congenital muscle disease called Central Core Disease, which is caused by an RYR-1 mutation. He cannot walk independently, has had nine orthopedic surgeries and has many other medical issues. Jackson is also a 10 year old boy who attends West Bradford Elementary School and loves science, playing sled hockey, being a Cub Scout and of course - bowling! Come enjoy an afternoon of fun with us to help raise money for the RYR-1 Foundation!  We will have great raffle prizes and some yummy baked goods for sale.

We are privileged to have a replica Philadelphia Eagles helmet signed by Carson Wentz and Nick Foles! You can submit your bid in a silent auction at the event to win this amazing item. See photos in the gallery below!

There are two ticket options: 

$15/ticket: 2 Hours of Bowling & Shoe Rental

$30/ticket: 2 Hours of Bowling, Shoe Rental, & RYR-1 Bracelet (these awareness bracelets are handmade in South Africa and proceeds go to the RYR-1 Foundation - see below for photos)

All proceeds benefit the RYR-1 Foundation to support research that can help find a treatment and cure for Jackson and many others with RYR-1 related muscle disease. All donations to the RYR-1 Foundation are matched dollar for dollar by a generous donation from the Schooner Foundation! 

For event updates, check our Facebook event page (Pack the Palace for Jackson), or click here.

If you cannot attend, but would like to make a donation to the RYR-1 Foundation, please click on "DONATE" above.

To learn more about the RYR-1 Foundation and it's efforts, please click on this link: ryr1.org.

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When
Sunday December 2nd
1:15 pm - 3:15 pm
Where
Palace Bowling & Entertainment Center, East Lancaster Avenue, Downingtown, PA, USA
977 E Lancaster Ave, Downingtown, PA 19335, USA

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