The Conquering CHD - IL chapter is a program of Conquering CHD, aimed at improving the lives of those with congenital heart disease and their families through direct support and education – meeting families where they are.
Through our State Chapters we are able to give knowledge, give a voice and give hope, directly meeting the comprehensive, lifelong needs of patients with congenital heart disease and their families through support, education, advocacy and research programming.
Local activities include:
-Conquering CHD Kits offering critical information and a personal connection for patients with CHD of all ages through individualized care packages
-Online chat networks bringing people with similar experiences together
-In-person peer support offering patients and families encouragement and insight from someone who has walked a similar path
-Social events providing a safe environment to celebrate life and simple joys together
-Physician education improving understanding of congenital heart disease from the patient and family perspective
-Research promotion and participation helping promising developments become reality
-Advocacy activities sharing our stories to improve federal research funding.
Find more information about Conquering CHD at: www.conqueringchd.org
Conquering CHD - Illinois www.conqueringchd.org/Illinois
On July 31, 2006 Peyton's family received devastating news less than 24 hours after Peyton was born. Peyton was born with several congenital heart defects. Peyton was born with a PDA valve that did not shut and sub-aortic Stenosis. Peyton spent 6 days in the NICU until the cardiologist felt she was stable enough to go home with her family and await her first surgery. In the following months Peyton’s family armed themselves with as much information as they could find in regards to congenital heart defects.
Peyton would follow-up for check up’s with her cardiologists. At 6 months old it was also discovered that Peyton had a hole in her heart but she was doing well. At 9 months it was discovered that the sub-aortic Stenosis had thickened and that it was time to perform Peyton’s first open heart surgery. The surgery would take place on June 14, 2007 at Hope Children’s Hospital in Oak Lawn. Peyton came out of her first surgery in complete heart block. She lived at the hospital til she was strong enough for her 2nd surgery to place a pacemaker. She came out of her 2nd surgery in Atrial Fiblirations. Peyton lived with this for almost two years. However it was controlled by medicines.
In 2010 Peyton was diagnosed with an enlarged heart due to a leaky mitral valve that would eventually need surgery. However they would not do this surgery until it was necessary.
Peyton has had hospital stays for illness, and get sick easier than most kids because of a lower immune system. Peyton has also had therapy since she was 2 for speech, occupational and developmental delays. Peyton was diagnosed in 2010 with speech Apraxia. She lives life to the fullest. She has a smile that lights up a room when she walks into it.
On April 12, 2012 doctors informed Monica it was time to schedule Peyton’s next surgery to repair her mitral valve. Peyton had this surgery on June 14th they also replaced her pacemaker during this surgery. The surgery was not a permanent fix for Peyton’s heart but at her age of 5 it is best to wait to replace the mitral valve til she is older. Peyton will have surgeries through out her entire life to continue to help her heart function.
Peyton did well with her surgery and has since had 3 pacemaker surgeries and two hip surgeries. She turned 14 in July and is now a freshman. She is an inspiration to everyone who meets her. Please consider joining us by walking or donating to her page to raise money for Conquering CHD-IL. This program has done so much for Peyton and so many other kids and their families.