Owen is a bright, fun and determined little boy who enjoys playing with friends, cars and trucks, swimming, soccer and doing anything outside. In 2015 within hours of Owen‘s birth, he began having seizures and was admitted to the NICU at MGH. We soon learned that these seizures were a result of multiple strokes he suffered right around birth. At the time we were scared, felt isolated (we had never heard of a baby having a stroke), and his future was uncertain - would he survive? would he walk? would he talk? would he ever be able to do anything on his own?
Everyday Owen works hard strenghtening and evolving both his fine and gross motor skills. He wears an AFO (ankle foot orthotic) on his right leg to help make his leg stronger- allowing him to walk, run and jump safely. He also is in both physical and occuptionatonal therapy on a weekly basis which helps him to become stronger and keep up with his friends on the playground and in the classroom.
Pediatric stroke happens 1 in 2800 live births. Still relatively uncommon, it was difficult for our family to find the support and direction we needed to navigate Owen’s care. CHASA (Children Hemiplegia and Stroke Association) has been (and continues to be) a huge resource for our family (as well as other families) impacted by this diagnosis.
This year we would ask that you consider making a donation to CHASA - Childrens Hemiplegia and Stroke Association - in lieu of a gift for Owen’s 4th birthday. A stroke diagnosis can be a large financial hardship on a lot of families based on the therapies (PT, OT, speech), orthotics, and other needs that are either not covered, or just partially covered by insurance. CHASA helps to provide these families with resources necessary to help kids thrive. We are hoping to raise funds to provide an orthotic to another stroke survivor in need.