I am running the NYC marathon on November 4th 2018 to raise funds for Children's Cardiomyopathy Foundation in loving memory of Brandon Raphael Cash.
Brandon Raphael Cash is the first born child of our dear friends Steve and Cristiane, after a long journey trying to bring a baby into the world.
Born in New York on the 5th November 2016, he brought love, happiness and hope to all who met him.
A great and “easy” baby, he looked as he has been here before according to several people who met him. Brandon left this world suddenly on the 15th December 2016 and we later learned he had Hypertrophic Cardiomyopathy - HCM, a common cause of sudden cardiac arrest in youth but rare in infants.
We would like to support the Children’s Cardiomyopathy Foundation in his memory in the hopes that research into this condition will one day provide answers to the many questions his parents are left with.
The Children's Cardiomyopathy Foundation (CCF) is a national, non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle. CCF is dedicated to accelerating the search for cures while improving diagnosis, treatment, and quality of life for children affected by cardiomyopathy. CCF actively works with federal agencies, medical societies, voluntary health organizations, and hospitals nationwide to increase awareness, accelerate research, and advance education on pediatric cardiomyopathy.
The hope is that one day every affected child can be cured to live a full and active life.