After having to bow out last year due to injuries, I'm so excited to be running in support of Team Cure SMA again in the 2019 New York City Marathon!
Spinal Muscular Atrophy is a rare and deadly genetic disease that afflicts 1 in 10,000 babies and severely affects their muscular development. Lacking medical support, babies born with SMA do not generally live past the age of 4.
My mom spent her career at Ionis Pharmaceuticals leading the effort to develop a treatment for SMA and recently the company succeeded in getting FDA approval for Zolgensma, an IV gene therapy treatment for the disease. The drug not only helps children receiving treatment to survive longer, but also regain muscular control and mobility for higher quality of life. Now, Team Cure SMA is working to provide access to the drug for all patients who need it.
Please help me reach (and pass) my goal of raising $3,000 to help cure SMA - any amount you can give will help children with SMA to lead long, healthy, active lives!