We will be walking from the Loudoun Valley High School to the Purceillville Train Station and back on the beautiful W&OD Trail to raise awareness and funds for the Dysautonomia Support Network during National Dysautonomia Awareness Month. All participants will recieve an awareness shirt. Pets will receive a medal.
Parking is available at the highschool.
Dysautonomia refers to a spectrum of neurological disorders that involve the autonomic nervous system (ANS). It effects children and adults.
When the ANS misfires and produces excessive sympathetic activity the symptoms can present as hypertension or a rapid pulse rate as seen in patients with Postural Orthostatic Tachycardia Syndrome (POTS) and Hyperadrenergic POTS (hPOTS). Other forms include Neurocardiogenic Syncope (NCS), Orthostatic Intolerance (OI), Autoimmune Ganglionopathy (AAG), Pure Autonomic Failure (PAF), and others. Some forms, such as Multiple System Atrophy (MSA) are fatal.
Symptoms may affect every system in the body, are unpredictable, can be debilitating at times or permanently disabling to some. These disorders affect children, teens, and adults. There is currently no cure but ongoing research is offering hope for better understanding and new treatment options. Over 70 million people in the world are living with one or more forms of dysautonomia.
How does DSN help?
DSN is a U.S. based, 501 (C) (3) non-profit, an organization providing support, resources, education and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Activation Disorders, Chiari Malformation and Gastric Motility Disorders.
We empower our members by supplying them the tools, support, education and resources they need to adapt to life with chronic illnesses while challenging themselves to set new goals despite their physical limitations. Toward this end, we provide scholarships for education, volunteer opportunities, advocacy training, service dog grants, educational programs and other essential resources to enable our members to actualize their dreams. We are an all-volunteer organization, run by patients for patients. 100% of donations go directly to patient programs.