Shana Bairrington wrote -
Welcome to Nolan's Crew!
Nolan was a typically developing boy and then out of the blue he had a seizure on March 1, 2013, two weeks before his 4th birthday. He then had a second seizure 2 weeks later and then a third seizure on Easter Sunday 2013. Within a few months he began to have daily seizures.Nolan has Doose Syndrome. Doose is an early childhood onset type of epilepsy that is often resistant to medication. With his syndrome anything can set off seizure activity in his brain, therefore utilizing drugs is like trying to hit a moving target. What might show some signs in working can stop working as quickly as it started and without warning. In the past 5 years, we have tried over10 different medicines and numerous alternative therapies. Nolan has gone through so much and has had many days filled with seizures. Overall, Nolan is much better now than when his seizures began. His seizures seem to follow a steady pattern and he rarely misses school. As an added bonus, he almost always has a smile on his face which helps us a great deal! Nolan is now 9 which means that he has been having seizures for more than half of his life. This is hard for us to imagine, but no matter what, we will continue our fight for him until we reach our ultimate goal...seizure free!!!
Please help up raise money for seizures dogs and seizure monitors like we use for Nolan!