Transplant Type: Heart
What if you were living on borrowed time?
Born with a complex and severe Congenital Heart condition, I am categorized by the Adult Congenital Heart Association (ACHD) and American College of Cardiology (ACC) as a Group 3 Congenital Heart Disease of Great Complexity.
When I was a few months away from my first birthday, my mother was perusing through Sears and found this cute little dress. She paused, picked up the dress and continued to walk around. A few minutes later, she put the dress back; she didn’t know if I would make it to my first birthday. Devastated, she walked back to the car, where Baba was waiting with me because doctors strongly advised against taking me into public places. She sat down and told my Baba about the dress, the cute design, the lace and then she went quiet. They sat in silence for a few seconds, and glance back at me, napping in my car seat. Baba immediately told her to go back and said, “she will make it to her first birthday”.
Well, she did, and I wore that cute little dress on my first birthday.
Today, 29 years, 7months and 4 days later, on August 17th, 2021, I received a HEART!
I RECEIVED A HEART!
This has been an extremely challenging time for Daniah as she is used to being much more active and independent. Daniah is grateful for her family and friends who have been by her side every step of the way. She wishes they did not need to be so concerned about her health but is thankful for their love and support. Daniah looks forward to the transplant that will allow her to be healthy enough to live without the worry that her health will inhibit her ability to get out of bed. More than anything, she simply wants the opportunity live her life fully, but right now, she needs your help.
Finally, a chance at life. A chance to go back to school, travel the world (well after the pandemic of course) and spoil family and friends with baked goods as I experiment with new recipes! A chance to thank every single person who has been on this journey with me, a chance to thank YOU for being by my side, giving me the strength to fight.
Of course, this new life comes at a cost, and since Oz isn’t giving out hearts anymore, I have started this page.
The average heart transplant costs more than $1 million. And that is only the beginning. Even with health insurance, which will cover a portion of the transplant costs, she still faces significant medical expenses related to the surgery. She will need a lifetime of follow-up care and daily anti-rejection medications. These medications are very costly, and they are as important to her survival as the transplant itself.
Daniah must travel more than 180 miles to reach her transplant center for evaluations and doctors’ appointments. When she receives her transplant, Daniah and her caregiver will need to stay near the hospital during recovery, incurring substantial expenses for travel, food, and lodging, adding to the financial strain.
What if your life depended on the compassion and generosity of others?
The average heart transplant costs more than $1million, and this is only the beginning. Even with health insurance, which covers a portion of the transplant costs, the medical expenses pile up. Post-operative care, recovery, relocating near the hospital with my caregiver, the substantial expenses just for travel, food, and lodging.
In between creating a new daily routine, I will be going for regular evaluations and doctor appointments, traveling 180 miles to my transplant center, one way. I will need a lifetime of follow-up care and daily anti-rejection medications. This is my new normal, but the challenges have never fazed me.
Thankfully, The National Foundation for Transplants is a platform available to transplant patients which works with volunteers and supporters to help relieve the growing burden of expenses. The National Foundation for Transplants has been assisting transplant patients with advocacy and fundraising support for 35 years. Your gift—of $25, $50, $100 or more—will be going DIRECTLY to Daniah to provide the financial support during this long recovery journey ahead.
You can help by making a tax-deductible donation to the National Foundation for Transplants in honor of Daniah.
If you'd prefer to send your gift by mail, please send it to the National Foundation for Transplants, 3249 W. Sarazen’s Circle, Suite 100, Memphis, TN 38125. Please be sure to write "in honor of Daniah Khan” in the memo line.
Thank you for your generosity!
If you have any questions about The National Foundation for Transplants, feel free to contact the staff at 800-489-3863.