Four years ago I got to know Jonah’s Just Begun, a foundation with the goal to fund a cure for MPS III, also known as Sanfilippo Syndrome.
You can find all the information here: www.jonahsjustbegun.org
A clinical trial for a gene therapy is within reach but there is a lot of money needed to make it happen.
In the last two years I have visited New York City twice and have taken over 1000 photographs in all five boroughs.
If you want one of them, all you need to do is to donate to this campaign. I will then send you a link to download your picture.