Ten years ago, Nancy Cornelius set-off to create a community of the under-served and unrecognized. She felt it was important for those fighting a complicated disease that most doctors had never heard of, to not feel so alone. With little experience or knowledge in creating or leading a non-profit, she developed a mission and organization that continues to grow and thrive and most importantly achieves every day what Nancy was so determined to achieve, that nobody with Dyskeratosis Congenita or other telomere disorders would feel alone. For many, Nancy was the first voice they heard after finding fragments of information for an overwhelming and scary diagnosis. She met everyone with an encouraging voice, wit and compassion at the most difficult time of their lives. She did this while managing her own medical victories and complications.
In 2008 Nancy incorporated Dyskeratosis Congenita Outreach, Inc. (DCO) and became the organization's first President. In 2018 DCO changed its name to Team Telomere, with the objective of casting a broader net to reach out in name to those they have always supported, those with telomere disorders, including Dyskeratotis Congenita.
Please help us honor Nancy by celebrating her life by supporting the organization she founded. Your donation to Team Telomere, a 501 c(3) organization, will support the work that Nancy started. Your donation in Nancy's honor will continue to ensure that those who are part of this community never feel alone. In honoring Nancy, you will support Team Telomere's mission of providing patient advocacy, raising awareness and supporting research to improve and extend the lives of those with telomere disorders, and ultimately find a cure that would be the ultimate tribute to our advocate and fighter, Nancy Cornelius.