I was diagnosed with the auto-immune disease Juvenile Dermatomyositis over 20 years ago... after going many years with no answers. To this date I have tried more medications than I can remember and still actively receive a monthly treatment amongst other medications to maintain the severity of the disease. None of these treatments are easy and all come with some terrible side effects!
Fast forward 20+ years from diagnoses, I am more than just someone with JDM and refuse to let it define me. I am a wife... mom to 2 amazing little guys, Blake (8) & Evan (4)… work full time in Sales & Marketing for the hospitality industry... and been a high school cheerleading coach for going on 13 years. Every time I see a new kiddo diagnosed with this disease my heart just aches for them because it just isn't fair what we go through and then now as a mom... for their families.
We need better... we need research... we need a cure! I want this so bad for both me and them!