We are the faces of MSMDS
We are currently living in a world full of panic and distress due to COVID-19. As the whole world is focusing on this disease, resources were pooled to create a vaccine in just 8 short months to stop the progression of this deadly virus.
Imagine the panic and anxiety many have experienced as a result. This is the reality that individuals and their families living with MSMDS experience everyday. Imagine that your best hope is that your child will make it to the age of 18, and you have a funeral planned for whenever the moment may come. Imagine no one knowing about the ultra rare disease that your child suffers from, and as a result, very little research is done to find a cure.
There have been less than 50 documented cases in the world. There is no cure, there are no world resources, and there is no clinical team whose sole focus is MSMDS.
ACTA2 Alliance is working diligently to raise awareness and funds for research opportunities that will provide better outcomes for our most precious and fragile family members.
Although COVID-19 brings many hardships, we ask that you consider donating, whether it be a few dollars that would have been spent on your weekly commute coffee, or the gas money that you no longer have to fill your vehicle with. Please consider donating to help us fight MSMDS
Donor Matching up to $25,000