2019 MSA Coalition Patient & Family Conference


Event Details
2019 MSA Coalition Patient & Family Conference

2 DAY EVENT SEPTEMBER 27 & 28, 2019

ORLANDO, FLORIDA USA

*** PLEASE NOTE: SEATING IS LIMITED ***   

EVENT REGISTRATION IS REQUIRED TO RESERVE YOUR SPOT AT THE CONFERENCE

NOTE: Only those planning to attend in person are to register.  The live stream link at our website is open to everyone. 

Deadline to Register: September 5, 2019

PLEASE SEE ADDITIONAL CONFERENCE INFORMATION AT www.multiplesystematrophy.org/msa-resources/annual-conference/ 


REGISTRATION DEADLINE:

The deadline for conference registration and booking your room at the conference rate is September 5, 2019. However, we strongly recommend you book your room as early as possible as we expect the conference rate to book quickly. A one-night deposit is required to book your room, which is refundable if cancelled at least five days prior to your arrival. 


CONFERENCE REGISTRATION DEPOSIT:

There is a $30 per person conference registration deposit to hold your spot. When you arrive, you may choose to convert this amount to a donation to the MSA Coalition’s educational fund, or you may opt for a refund. Note that if you choose to register multiple people at one time on your order, all tickets will be refunded if one person within the group cancels and requests a refund. To avoid this issue you may wish to register people in your group under separate ticket orders.  


CANCELLATION POLICY

Cancellations received by September 5, 2019 will be issued refunds upon email request to: conference@multiplesystematrophy.org

"No shows” and cancellations not received by September 5 will not be refunded in order to offset the costs associated with your registration. 

 

REGISTRATION INSTRUCTIONS:

(Please have your credit card ready to make your $30 per person deposit payment.)

1. Please select the number of tickets required for your party and select CONTINUE. 

2. Fill out all ticket information for each participant.  Note that all required items are marked with a red asterisk.

3. After completing each section click CONTINUE.  

4. Finally, enter your Credit Card information and click CHECKOUT. 

Note that submitting your registration constitutes your signature agreeing to and confirming all information provided herein.


CONFIRMATION OF REGISTRATION:

After completing your registration you will receive a confirmation message on the screen with your Order Number.  Check immediately for a confirmation email from MSA COALITION with subject line: 2019 MSA Conference Registration Confirmed.  This will contain your order details and tickets attached as a PDF.  

Please review the email and double check all details.  If you need to make changes to the names on your tickets please contact us directly at conference@multiplesystematrophy.org or 1-866-737-4999 


HOTEL INFORMATION:

Hotel Venue: Disney's Yacht & Beach Club Resorts

Hotel Address: 1700 Epcot Resorts Boulevard, Lake Buena Vista, Florida, USA 32830-8407 


HOTEL BOOKING:

Book at the MSA Coalition Group Rate until September 5, 2019

Call the Disney Group Reservations Phone Team (407) 939-4686. Ask for the MSA Coalition group rate ($249)

Or reserve by using our online booking website, which also includes the conference registration link: https://www.mydisneygroup.com/msa2019

There are a limited number of value resort rooms available for those with a sincere financial need. You can search at the booking site or inquire by phone. 


ADA ACCOMMODATIONS:

Disney has a wide variety of ADA accommodations available. Calling to discuss your specific needs is recommended when booking your room. Because ADA rooms are limited, please only book such a room if absolutely necessary so there are enough such rooms available for those who really need them. 

We highly recommend that you contact the hotel directly to check if the room will meet your needs or to arrange for any additional special equipment. It is your right to request reasonable accommodations to suit your needs.


WALT DISNEY WORLD® THEME PARK TICKETS & PASSES:

Group discounted tickets and passes are available at  https://www.mydisneygroup.com/msa2019


*** PLEASE NOTE: SEATING IS LIMITED ***

EVENT REGISTRATION IS REQUIRED TO RESERVE YOUR SPOT AT THE CONFERENCE

NOTE: Only those planning to attend in person are to register.  The live stream link at our website is open to everyone.

Registration Deadline: September 5, 2019

PLEASE SEE ADDITIONAL CONFERENCE INFORMATION AT www.multiplesystematrophy.org/msa-resources/annual-conference/

See More See Less
When
Friday September 27th
9:00 am
Where
Disney's Beach Club Resort, Epcot Resorts Boulevard, Lake Buena Vista, FL, USA
1800 Epcot Resorts Blvd, Lake Buena Vista, FL 32830, USA

Story
Celebrating 30 Years of Service to the MSA Community

The Multiple System Atrophy (MSA) Coalition® is a positive beacon of hope standing up to a little known, rare, insidious disorder.   Since 1989, the MSA Coalition has been devoted to improving the quality of life and building hope for people affected by multiple system atrophy by focusing on a four-pillar mission:


- Providing patients and caregivers with trusted and compassionate emotional support

- Educating patients, care-partners and healthcare professionals with credible, critically important and relevant information

- Funding patient-centric collaborative research aimed at alleviating symptoms, slowing disease progression and discovering a cure

-  Building a sense of community by connecting and unifying people affected by MSA


The MSA Coalition® is the premiere US nonprofit organization dedicated to support, education, research and advocacy for this devastating neurological disease. Thousands of participants benefit from the annual MSA Coalition Family Conference, which is live streamed and posted online. With multiple online discussion groups and a dedicated support line, someone is always there to help. As the host of the first-ever Global MSA Advocacy meeting, the MSA Coalition works with other like-minded charities to foster a community of support and care. As the leading nonprofit funder of global multiple system atrophy research, the MSA Coalition has a proven track record of catalyzing research collaborations, and with the advice of our world renowned Scientific Advisory Board, selecting and funding the most promising research efforts around the world. As of 2019, $1.7 Million has been granted to 36 MSA research projects at 20 research institutions.


Learn more at http://www.multiplesystematrophy.org/ or call our support hotline tollfree 866-737-5999

Posted by The Multiple System Atrophy Coalition