Want to join me in Stepping Up for Fragile X? I'm raising money for FRAXA Research Foundation and your contribution will make an impact, whether you donate $5 or $500. Every little bit helps. Thank you for your support and raising awareness for Fragile X syndrome. I've included information about FRAXA Research Foundation below.
FRAXA's mission is to find effective treatments and ultimately a cure for Fragile X syndrome, the most common inherited cause of intellectual disabilities and autism, by directly funding the most promising research.
Jagger was diagnosed in January 2019 with the full Mutation of Fragile X Syndrome. We met a co-worker from FRAXA in the Spring of 2019 at Boston's Children's Hospital. Since then I have met or been introduced to so many others from FRAXA along with one of it's Founders. They keep in touch with us, send us new information, and give us hope for a cure one day or more advancements in new medicines. Please think about donating. My family had no idea this rare disease ran in our family, it is my goal to help someone else's family find this may be their child as well.