If you are reading this then you are likely a friend of mine and Christine. So, you should already know about the horrible disease that has taken from her the things in life that we take for granted: ME/CFS. You also likely know that I am a member of the Board of Directors for the Solve ME/CFS Initiative (SMCI), the organization that funds cutting edge research to find a cure for this disease. I am asking you to please help us.
Most of you have heard me talk about how misunderstood and how underfunded ME/CFS is. While we are excited that NIH has begun to study the disease, in part due to our efforts, their funding is still very small and most research continues to be underwritten through individual donations, like yours.
Your support will make possible the cutting edge work of researchers like SMCI Ramsay Grant Program recipient Dr. Liz Worthey at the HudsonAlpha Institute for Biotechnology. Dr. Worthey and her multi-disciplinary team use whole genome sequencing and apply in-depth analytical approaches to understand the genetic underpinnings of chronic diseases. This is a highly novel approach that has potential to impact our ability to diagnose and treat ME/CFS patients – like Christine.
Most of you know that in 2010 Christine was diagnosed with and treated for Non-Hodgkin’s Lymphoma. At that time she benefited from what had started decades before with small private and then government funded research programs. These provided the catalyst that now is carried out through billions of dollars of research work funded by drug companies. ME/CFS has no provate funding source except private support like yours and limit NIH spending.
Today, ME/CFS is where cancer was decades ago. Christine would tell you that given the choice between cancer and ME/CFS she would take cancer. Why? Because unlike ME/CFS, it is understood, diagnosable, treatable, and in the words of her oncologist, in more and more cases, curable.
So, beyond helping your Christine, you are supporting efforts that will enable us to understand an area of human biology is truly a mystery. This is where ground breaking order of magnitude advancements in science and medicine occur that will lead not only to a cure for this disease but others as well.