The 2020 Sickle Cell Matters Walk will bring nearly 1,000 people together to raise consciousness around the most common genetic disorder in the United States. More than just an awareness event, we walk to raise funds, promote the need for additional research, and combat medical inequities often faced by sickle cell patients.
Funds raised through the 2020 Sickle Cell Matters Walk help provide educational and career resources to students and adults, ensure quality counseling services for navigating life with this chronic condition, offer a bridge to primary and specialty care for underserved individuals, support low-income clients in need of emergency financial assistance to meet basic needs, and more.
Sickle cell disease (SCD) is the most common genetic disorder in the U.S. Its effects can be devastating with complications including severe pain, anemia, infection and stroke. It is particularly common among those whose ancestors came from sub-Saharan Africa, Spanish-speaking regions in the Western Hemisphere, Saudi Arabia, India and Mediterranean countries such as Turkey, Greece and Italy. Every child born in the U.S. is tested for SCD at birth.
· Approximately 3 million people in the U.S. and 200 million worldwide are carriers of the sickle cell trait. Many are unaware of their trait status
· Over 100,000 Americans are currently living with sickle cell and its effects impact the entire family.
· 1800-2000 infants are born with SCD each year in the U.S.
· There are nearly 3,000 people living with SCD in Michigan; approximately 1,600 of those individuals live in metro Detroit.