Our beautiful daughter, Mia, is turning 2! She is thriving in so many ways. She is social, silly, and tries hard to keep up with her older brother. Just like her mama, Mia was born with Epidermolysis Bullosa (EB), a rare genetic skin condition. Although she doesn't let EB slow her down, Mia continues to deal with significant daily blistering and wound care.
In lieu of gifts for her birthday, we are asking that you join us and consider making a donation to EB Research Partnership in honor of Mia.
"EB Research Partnership is the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa, a group of devastating and life-threatening skin disorders that affect children from birth."
To learn more, please visit EB Research Partnership's website at https://www.ebresearch.org/
Thank you for your support in helping us find a cure for EB!