On Sunday, October 27, 2019, I will be running the Marine Corps Marathon 10k alongside the National Pancreas Foundation Team through the streets of Washington, DC to raise money for cutting-edge research for those suffering from Familial Chylomicronemia Syndrome, or FCS.
My daughter Giuliana was diagnosed with FCS when she was 7 weeks old. She had pancreatits, a kidney and liver infection, and triglycerides over 24,000. Starting the FCS Foundation in 2016 alongside Lindsey Sutton has allowed us to connect with patients, caregivers, and medical professionals, all in the name of increasing awareness, diagnosis and treatment of FCS for the one to two per million suffering from this rare disease. Giuliana is my motivation-my rare "zebra" in a world of horses. Please help contribute to a future that allows her access to experienced medical professionals, treatment, and support from other FCS patients.
The FCS Foundation could not be where it is today without support, guidance and assistance from the National Pancreas Foundation. The NPF is the only foundation dedicated to patients who are suffering from all forms of pancreas disease – pediatric pancreatitis, acute pancreatitis, chronic pancreatitis and pancreatic cancer.
Your donation will help the FCS Foundation continue it's mission of connecting patients together with medical professionals to get earlier diagnosis as well as better outcomes through patient support groups,
Thank you for supporting our mission and helping provide hope for those with pancreas disease.