Besides running for wellness this year Melia runs in honor of Emilio Pachon- the inspiration behind the Genes Foundation and to the world in general. Help us to honor his memory by donating!
Genes Foundation This foundation began as a wish of a mother whose child was diagnosed with Neurofibromatosis and needed support to face this condition. It was possible because of the commitment of his amazing Doctor and friends that have been involved throughout the years in this challenging journey full of hope.
What does GENES do? We created GENES to educate patients, parents and siblings about the genetic condition the child was diagnosed and now is facing.
We offer tools that will provide the emotional and physical support needed for the patient and their family. We help them to understand that through the experience we’ve gained by dealing with a similar situation, we as a team can help the patient to achieve his or her full potential with love and persistence. We want to encourage families to spread the word regarding all the services available to those facing genetic conditions. Hopefully they can become a beacon for others as well, giving back to this community. The more we work together, the more we can help others who are in desperate need for emotional support.
See more information at www.genesfoundation.com