Megan and Evie are sisters by fate. They both are missing a tiny piece of their 9th chromosome resulting in a condition known as Kleefstra Syndrome. It is a rare syndrome with only about 500 people in the word diagnosed. With it being so rare, we are lucky to live so close to eachother! A couple years ago, some parents of children with KS got together and started our foundation, now known as K.I.D.S. IQ PROJECT. Since the cause of KS is known, there is hope that treatment can be found to reverse the affects of the syndrome on the brain and consequently the body of those affected. In the short two years since research began, there have already been two drug hits in the lab! The excitement of what this potential treatment could mean for these sweet girls (and so many others) cannot be put into words. We ask that you consider making a tax deductible donation towards this research. In doing so, you will be sponsoring the girls in their Walk and Roll on October 14th from 2-4pm at Halleck Park in Papillion. If you are local and can come walk with us, that would be AMAZING! Raising awareness for rare syndromes is so important. That is when treatment becomes a reality. When enough people know about and care for those affected, change happens. Autism, breast cancer, Alzheimer's...everyone knows about these disorders and large events are held to raise funds for research. Kleefstra Syndrome research can only happen through us reaching out to family and friends like you! ...So we are asking you, Will you help Megan and Evie today?
