This is Tommy. He was a light and a joy to all. It's been a year since Tommy's passing and we miss him everyday.
Tommy battled Junctional Epidurmolysis Bullosa Generalized Severe. He endured the disease valiantly but passed away just months before his first birthday.
I will be running a marathon in honor of Tommy. I would love to use this race to raise awareness and financial assistance for the EB Foundation. I would appreciate any support you are able to give.
Thank you friends!