Please join my team and help us raise awareness for Dysautonomia and related conditions, reach our personal goals and fundraise for a non-profit that continues to impact my life, the Dysautonomia Support Network. I'd like to thank my husband for all his support and climbing on board in doing this Virtual 5K with me.
I have lived with disease all my life, but never diagnosed until 2012. It was then that we found out that like our primmary immune deficiency, it was affecting the female line of our family (suspect grandmother by her symptoms, my mother and aunt, and my daughter). Because it is an invisible illness, many people don't understand what we are going through. Living in Maine, with few large populated cities, makes it even more difficult to find others who understand the daily struggle. Dysaunomia Support Network has been such a great help with finding resources and meeting others with this disease. I will add orther stories as team Maine grows so you can hear their stories as well. Some are unable to even be mobile, but they are still on Team Mainely Dazzle. We will do this together!
You can walk the 5K by tracking your steps between now and Oct 31st. Walk, run, roll. anyway you want to it, we’ll take it. Did you know that it takes a person only 200 steps per day to walk a 5k in 30 days! Can you beat that? Do it in 15 days...Or even at one time? Sign up for the Superhero Scramble today and start working toward your goal!" I would really appreciate your support in any way that you are able to help. Register or Donate today.
NOTE if you register, please select team"Mainely Dazzle" from the list.
Thank You Everyone for helping to raise awareness and support this team!
