Our mission is to build a better and brighter future for all those affected by spina bifida.
In honor of Spina Bifida Awareness Day, coming on October 25th, we are keeping this fundraising page open. Throughout October, we will celebrate Spina Bifida Awareness Month with the rest of the spina bifida community throughout the United States. This is in conjunction with a national Walk-N-Roll that will take place at the same time.
WHY SUPPORT SBAGNE?
- We are the only voluntary health organization in the New England area solely serving individuals living with spina bifida and their families
-We connect members with health and disability resources in their community
-We offer social and community events that connect children and adults living with spina bifida and their loved ones in a way that values lasting connections and creates an environment of community and support
-We hold the New England Spina Bifida Conference for SBAGNE members, medical professionals, and other service providers to bring information and resources directly to the community
- We hosted 450 attendees for social events for families, youth, and adults and provided outreach to 25,000 people at the Abilities Expo and Massachusetts Women's Conference
We invite you to walk or roll in your best TEAL in the days leading up to October 25. Pick a time and date that works for you and walk or roll around your house, your neighborhood park, local track, or wherever you like to #GetActive! We'll ask you to post photos or videos of your walk, your story, or even your talent to a designated event page. We are in the process of planning a fun day of virtual activities, so stay tuned for more information on how to participate in this interactive event.
Please remember to follow your state and local guidance on social distancing and coronavirus prevention. Your safety is our TOP priority!
Walk-N-Roll for Spina Bifida is a family-friendly, non-competitive, one-mile walk event and educational resource fair that raise awareness and celebrates the accomplishments of the over 180,000 Americans living with spina bifida. Proceeds are used to support local community programs and services for all affected by spina bifida.
The name "Walk-N-Roll" was selected because it embodies a sense of inclusiveness and invokes the sense of empowerment which the spina bifida community embraces in all that it does.
To create a team, click "JOIN."
As a non-profit, we are very grateful for your support, but we are also dependent on the funds you raise. A large part of the donation money we receive comes through fundraising websites like GoFundMe Charity since this is a convenient way for individuals to donate.
GoFundMe Charity charges a service fee to SBAGNE for each donation. We ask that you encourage your donors to "opt-in" to cover the fee during their online donation check-out process. This ensures that we are able to make full use of the donations made to SBAGNE.