After many months of excruciating joint pain and fatigue, I was diagnosed with Systemic Lupus Erythematosus (“Lupus” or “SLE”) the morning after Christmas in 2013. The journey towards remission has included high doses of prednisone and Benlysta IV treatments (the first and only drug approved to treat lupus), but there is still no cure.
Lupus affects each person differently with symptoms such as joint pain, extreme fatigue, disfiguring rashes, hair loss, cognitive issues, organ failure, and physical impairments that affect every facet of their lives. It can hit you without warning, but patients typically try to avoid the common triggers that include stress, cold, flu, exhaustion, UV rays from sunlight and various medications.
Please join me and my fellow lupies in raising awareness, registering for the Outrun Lupus 5K on Saturday, June 9th (linked below), and/or contributing towards finding a cure for this chronic disease.