On September 22nd, we will be walking with our son Luke to support the Epilepsy Foundation.
At just 8 months old, Luke had his first seizure. Little did we know, the next few months would involve several more seizures, hospital stays, numerous tests and trial and error of anti seizure medications. Luke's cause of his epilepsy was a mystery until we received his genetic testing results.
Luke has a very rare form of epilepsy caused by a genetic mutation in the SCN8A gene. Luke is one of a few hundred people diagnosed in the world with this form of epilepsy. So as you can imagine, the information and resources available for this disorder are extremely limited.
As a parent, all you want is for your child to be healthy. We pray that continued research will help us and other families get the answers we are desparately searching for.
We appreciate all of the love and prayers from close family and friends and thank everyone in advance for helping to support this incredible foundation. If you are able to join us for the walk, please be sure to register with our team.
Maura, Ryan & Luke