Luca is our strong little boy. He came into this world with a bang and I have a feeling he is going to forever keep us on our toes. Luca has Aortic Stenosis due to a bicuspid aortic valve. The first thing his cardiologist told us was if you are going to have a CHD this is the one to have. I remind myself of that all the time. Luca had his first cardiac cath procedure at the begining of October and it has held up well so far. At some point in Luca's future he will need open heart surgery and then eventually a valve replacement; hopefully not until he is much much older, maybe even adulthood. One in one hundred babies are born with CHD and with continued CHD research more babies can be saved and his open heart surgery could possible be done via a cardiac cath.
The Pediatric Congenital Heart Association’s mission is to “Conquer Congenital Heart Disease.” We are accomplishing this through collaboration with patients, parents, providers, and partner organizations to improve quality and outcomes through CHD education, support, research and awareness.
The PCHA-OH chapter is a program of PCHA, aimed at improving the lives of those with congenital heart disease and their families through direct support and education – meeting families where they are. Your donation helps support our CHD kit program which provides important educational resources to families when they need them most. Funds raised from the 2019 Conquering CHD Walk will provide inpatient dinners and holiday parties, social outings, advocacy conferences, and medical research grants to local doctors and researchers.
Thank you for your love and support!