This will be the first year I do this race. I hear it's beautiful up there, the trail is well maintained, and the people are amazing. But that's not why I joined. The more I read up about CF (or any other disease) it's heartbreaking to see all these people go through what they do...but they're strong everyday. At least I can do it for ONE day.
I read something the other day on CF awareness:
Basically, it's a rare genetic disease that makes your body produce extra mucus. The mucus clogs up your lungs and pancreas; making it hard to breathe. And your pancreas can't put out enough enzymes to digest your food...so people with CF have to do breathing treatments to clear their lungs of the mucus, and they have to take man made enzymes to help them gain weight. If you don't take your medicine and/or do your treatments, you're just hurting yourself & shortening your life...there are 2 meds out right now to help the cause but NO CURE!
I understand about diseases that don't have "cures" just "treatments" when my daughter got sick. It's super scary for everyone involved but we got to stay positive.
Good luck everyone who races and is fundraising as well.
If you can sponsor me that would be great...I won't let you down. (I'll at least walk the entire way) :)