Cystic Fibrosis (CF) is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time. Many different factors, such as age of diagnosis, can affect an individual's health and the course of the disease. It is complex and the types & severity of symptoms can differ widely from person to person. With nearly more than 30,000 people living with cystic fibrosis (70,000 worldwide) and approximately 1,000 new cases of CF are diagnosed each year, research is vitally important to the diagnosis and treatment of CF.
The Lost Lake Breath of Life Run is a 16 mile mountain race that began in 1992 with 55 participants and as a way to raise much needed funds benefitting the Cystic Fibrosis Foundation. Having very little fund raisers for CF in the entire state of Alaska, it was believed that there needed to be an event as big as the state itself. Today, the US Forest Service permit allows 750 runners on the trail on race day. In 2016, the race filled in just over 5 minutes, making it one of the more popular mountain races in Alaska. Since inception, this event has raised over $2 million dollars for the Cystic Fibrosis Foundation.
I have committed to completing this amazing race and ask that you join me today in supporting the Cystic Fibrosis Foundation with a donation no matter how big or small and let's give CF patients a chance. Every donation counts and every dollar adds up. So let's do this and make a difference!