We are a local family with a story to tell. Earlier this year, our six year old daughter Liv was diagnosed with a very rare autoimmune disease called Juvenile DermatoMyositis (JDM).
Only 1 in 500,000 kids receive this tough diagnosis.
Currently there are no FDA-approved treatments and no cure, but with your support we are determined to change that! Event proceeds benefit Cure JM Foundation, the global leader in JM research, whose mission is to find a cure and better treatments for children fighting JDM like Liv.
Learn more at www.curejm.org and follow Liv’s Journey on Facebook by liking www.facebook.com/livy.garcia.22
Together we can LivLifeStrong and Cure JM! If you’re unable to come to the event, please consider making a donation starting now.
HOW YOU CAN HELP TODAY
1. Make a donation. Help Cure JM find a cure for Liv and other children like her.
2. Support the LivLifeStrong Inagural Fundraiser Event - a Fun 5K Run/Walk. Look for more information in the upcoming months.
3. Share on all social media with hashtags #CureJM & #LivLifeStrong
4. Email this CrowdRise link and these steps to any contacts you think would love to come to our event or to companies interested in local community event sponsorship.
5. Stay Connected with us on Facebook at www.facebook.com/livy.garcia.22
Meet Liv's Troops
Joy and Kelly are Liv's parents and are leading the charge in raising money to find a cure for JM. Joy is a teacher and coaches basketball. Kelly is a nurse. Both of them have spent their entire careers helping others and are now on a journey to help Liv. Livy has tremendous support from her two sisters, Micaela and Sammy, and her Grandma Josie. All of Liv's extended family members and friends are rallying behind Liv with love and support.
What is Juvenile Myositis (JM)
Juvenile Myositis (JM) is a life-threatening disease that causes a child's own immune system to attack healthy tissue and cells. It can cause pain, weakness, inability to walk, disfigurement, organ failure and even lead to death. Juvenile Myositis can affect virtually any system of the body, the heart, lungs, skin, muscles, and more.
And there is no cure... YET. But that is where you come in....
Together, with our community behind us, we are determined to make a difference for Liv.
We are raising funds for Cure JM, the ONLY organization solely dedicated to accelerating the most promising JM research and improving the lives of every family fighting JM.
Thanks to support from friends and family like you, Cure JM is funding research at more than 20 prestigious research institutions, helping to advance JM research at an unprecedented pace.
With advances in early diagnosis and aggressive treatment, the outcome has continued to improve. Some children experience a mild form of the disease and may go into remission. Others follow a more severe and potentially debilitating course that can be life-long. Whether the course of the disease is mild or severe, JM is life-changing for these special children and their families.
Like most rare diseases, JM research funding is almost entirely from grassroots efforts like our family's event.
And yes, every dollar makes a difference! Together, Cure JM families have raised over $12 million dollars for Juvenile Myositis research, making Cure JM the global leader in Juvenile Myositis research. When we all work together, we have a big, big impact.
Thank you for supporting Liv. It means the world to her and to us. #LivLifeStrong
If you would like more inforamtion or have any questions, please email Joy at jmgarcia124@aol.com or Kelly at kmk.kapp@gmail.com
