Hi, My name is Kayla Mirielle Roge.
I was diagnosed with Type 1 Diabetes (T1D) just over 4 years ago, on February 10, 2016. This date will live in my mind, as significant as my birthdate. This was the day I was told that my life would change forever. As of this day I would never be able to eat a piece of food or drink a beverage as I had before. From now on I would have to calculate carbs, measure insulin, inject insulin for EVERYTHING. For whatever I eat I have to find out the carbs, calculate how much insulin and inject myself. If I don't eat everything I inject for I risk my blood sugar dropping and possibly going into a coma or worse, dying. If I eat more than I inject for or if I forget to inject my blood sugar can spike too high and I can go into ketoacidosis and end up in the hospital and can also end up in a coma or die. It is a VERY delicate balance and you can ask any T1D, it is a nearly impossible task to keep your sugars within the proper range for any extended period of time. It scares me that I have taken on this disease so young, because I have NO IDEA what all the yo-yoing is doing to my body now, and the effects it will cause to my body in the future. It is NOT fun and it is a big deal to have Diabetes. I sometimes ask WHY? Why do I have this? Why can't I be a normal teenager? Why can't I be free of sensors in my arms, tubes in my stomach, and beeping alarms going off at night while I am trying to sleep? I can't even go to a school dance without figuring out HOW can I wear my insulin pump? There are no pockets in dresses for my pump, which is attached to a tube, which is attached to my body. I mean WHO else has to worry about that, and 100 other things every day, for the rest of my life; unless they find a cure.
I am so thankful to my parents who have given up so much for me; time, money, sleep, worry, even our house, just to keep me alive. It's as unfair for them as it is for me. How much love they must have for me to do ALL that? I can't even imagine!! My mom and my sister Katie have not had many full nights of sleep since my diagnosis. They share with my phone to receive alarms when my sugars go high or low, when my phone stops receiving data (for whatever reason) or for any of the other dozen reasons there are alarms. Even with all that inconvenience I thank God that I have my Dexcom and my pump because those alarms have saved my life many times. I am so grateful for my family & all they do, there is no way to ever repay them. I am also thankful for my extended family & close friends who always try to support me by donations, joining me for fundraising events and even if only by prayers. You all know who you are, I am thankful for all of the friends of my family and friends who support my cause and donate when possible. Your kindness touches me.
No one will never know exactly how it feels, what it's like, or how hard it is. The COST of being a diabetic is immeasurable. Ignorant people still believe we "gave it to ourselves by the way we eat" Well there are 10 month old babies who ONLY have formula who have T1D, so maybe read a little and get educated. Part of WHY our group Macey's Believers, fundraise is to donate part of the money to research, development and AWARENESS for T1D. People are dying because of the high price of insulin, Dexcom & all the supplies, insulin pumps and all the supplies. We did NOT ask for this Disease and while there is STILL NO CURE, we SHOULD be able to afford to survive with what is available and not have to BEG for it. The other reason we fundraise is to create scholarship money to award to our group members to go to CWD-FFL (Children with Diabetes, Friends for Life) Conference.. Sometimes T1D's just need to be with others who do know EXACTLY what it's like. This one week each year is a lifeline, a place to feel the SAME as everyone else. No one is asking: "What's that thing on your arm?", or "What's that tube under your shirt?". We can make "friends for life" that we can talk to and confide in. Aside from that there are classes, meetings and activities to help us learn more about T1D and how to deal with living with T1D. We also learn about new technology coming out and the research that is going on to try to find a cure. Here we can eat without stress. ALL the food is labeled with the carbs.
For all of these reasons I will be participating in the 3rd Annual "Macey's Believers T1D Walk for a Cure". Last years was a great event, we raised money, had fun, and had some great food donated by local businesses. I am always one of the members in need of one of our groups scholarships, so I am asking that you please try to make a donation on my page. Any amount is appreciated, every dollar counts!!!
The more people who attend the walk, the more successful it will be, so I ask all our family & friends in a reasonable distance to try come and join us for the walk. Even if you can't donate, just being there and supporting me, will mean the world to me!! :)
Walk Info: Saturday, April 25,2020 / 9:00am - 12:00pm / Indian Riverside Park, Jensen Beach, FL / Registration starts at 9:00am, walk starts at 10:00am / Food and coffee provided by several local businesses (Flyer to come soon)
Thank you for your time, support and donations.
With Sincere Appreciation,
(Marlisa Roge, Scott Roge & Katie Roge)
(Macey's Believers, Inc. is a 501(c)(3) Non-profit charity organization supporting research, education and Type 1 Families! All donations are tax-deductible :)
Please visit our Macey's Believers, Inc. Facebook page and Instagram page for more information.
Thanks for your support!
Janice Gaskins- President Macey's Believers, Inc. Believing in a CURE!
Tax ID: 47-5524259 • https://www.facebook.com/search/top/?q=macey's believers, inc. - non-profit)