Epidermolysis bullosa (EB) is a devastating and life-threatening genetic skin disease that afflicts children from birth. Children with EB lack critical proteins that bind the skin's layers together; without these proteins, the skin tears apart, blisters, and shears off, leading to severe pain, disfigurement, and wounds that may never heal. There is no cure.
For over 11 years we've been involved with the EB Research Partnership, which our friends Jamie and Alex Silver co-founded after their son was born with EB. One of the tragic side effects of COVID is its impact on charities' traditional fundraising channels. This year, our annual gala is going digital––but first, we've set a goal of raising $3,000 to fund research to find a cure for EB. We hope you'll give, and we so appreciate your support.
Once you've donated, please join EBRP on Nov. 18, 2020 at 8 p.m. EST for Venture Into Cures, a first-of-its-kind digital event led by our co-founders Jill and Eddie Vedder. The show will feature uplifting stories of individuals with EB and their families, along with celebrity friends Adam Sandler, Laura Dern, David Letterman, Judd Apatow, Jimmy Kimmel, Lukas, Micah, and Willie Nelson, Keb' Mo', Luis “King Kong” Ortiz, and many more. Streamed globally by our partner Amazon, Venture Into Cures is filled with noteworthy moments, like the debut of a brand-new song by Eddie Vedder inspired by EB stories. All proceeds benefit EB Research Partnership. Learn more at www.ventureintocures.org.
EB Research Partnership (EBRP) is the largest global nonprofit funding research to discover treatments and cures for Epidermolysis Bullosa (EB), a devastating and life-threatening genetic skin disorder that affects children from birth. Founded in 2010 by a group of dedicated parents and Jill and Eddie Vedder (Pearl Jam), EBRP has raised $40 million and funded 80 EB research projects to date, impacting the clinical landscape with a 15x increase in the number of clinical trials in EB––from only two to over 30 today. EBRP is a non-profit 501(c)(3) organization, EIN: 27-2417202. All donations are tax deductible to the extent allowed by law.