This Team is led by Brian and Sandra's literal village: their neighborhood community of Kenilworth Village (+ supporters from Wilmette, Winnetka, Evanston, Glencoe, Highland Park, Glenview, Northfield, and more!), as well as Sandra's childhood "village" from grade school, middle school, and high school. It takes a village to do many things, and this one is going all in for Brian!
When he was diagnosed with ALS three years ago at age 37, a week after their younger daughter Naomi was born, Brian was told he'd be dead by 40. Until now, there has been no cure for ALS, and the existing treatments add weeks not years to life expectancy.
This fundraiser is seeking to raise a total of $1.7m across over 100 teams, to cover the cost of drug safety testing for a groundbreaking treatment that could make Brian one of the first people to survive an ALS diagnosis.
This treatment option, developed by two of the top scientists in this field, one of whom has a Nobel Prize for the work, has already stopped ALS in its tracks for at least one person in a Phase 3 FDA trial; we believe and hope it can do the same for Brian. And treatments that succeed with ALS are likely to yield breakthroughs in treating other neurodegenerative diseases like Alzheimer's, FTD (Dementia), Parkinson's, Huntingtons, Multiple Sclerosis (MS), and more. One To All is about curing Brian - and every other patient like him.
Questions? Contact Julia or Jon Atkin, Tara Stafford, or Kathy Garvey.
More info about this Team below:
Sandra’s parents have been the Garvey's neighbors from across the street for 16 years, so we’ve experienced their great friendship and the joy of watching Sandra and Brian achieve professionally, grow their family and become a pillar within our community.
The Staffords are also neighbors, and their daughters and Sandra and Brian's daughters are close friends.
The Atkins have known Brian since Julia and Sandra (who grew up together) ran into each other in the courtyard of the DC building where both couples lived, unbeknownst to each other! Sandra and Julia reconnected over conversation and a bottle of wine; Jon and Brian sealed their new friendship that Halloween dressed as bananas.
Both couples moved back to Chicago. We now live mere blocks from each other and our kiddos are buddies. An idyllic situation, except...
Brian's ALS diagnosis was shattering. How can one wrap one's head around a terminal diagnosis at age 37, holding a newborn baby girl? Of course, being the amazing humans they are, Sandra and Brian chose action, and founded a patient-led movement called I AM ALS to empower patients and accelerate funding for a cure; their legislative advocacy has thus far delivered $55m in new federal dollars for ALS research.
The fight is incredibly personal too. And Brian has a fighting chance, one that re-imagines a path to cure not only ALS but potentially other neurodegenerative diseases. This effort is their only hope of saving Brian. He wants to see his daughters grow up; he wants to grow old with the love of his life; he wants to survive. We are grateful for donations of all sizes - every penny takes us closer to hope.
One To All is fiscally sponsored by The Hopewell Fund, a registered 501(c)(3) non-profit (47-3681860). Donations are tax deductible.