Join Together for 42 million people in the world living with ET.
My name is Diann Shaddox and I’m the Founder of the Diann Shaddox Foundation for Essential Tremor. This is my story. I was in my early twenties when life changed for me. My hands began to shake when I’d do tedious work. No one, not even my doctor could figure out what was happening and believed I was nervous and needed to calm down. One day changed my world. I was standing at the post office window in Louisville, Kentucky. You see I wasn’t able to fill out a simple form containing my name and address. I could hear the whispers and comments from people standing in the line behind me. The confused look of the post office clerk told the entire story. I had been taught not to show my feelings in public, but tears flowed down my face as I raced out of the building clutching my package in my arms. My story began over 35 years ago, (since I was diagnosed with Essential Tremor (ET)). Now, my hands, head, legs, voice tremor and I also lose my balance.
Please help me. I can't do this alone. Make a difference in millions of people's live (worldwide) living with a disease that no one understands but millions live each day with.
What is ET? Essential Tremors (ET) is a progressive neurological condition that causes a rhythmic trembling of the hands, head, voice, legs, or body. Over 42 million people worldwide including children have ET, the largest movement disorder in the world. Recent research indicates that 5 out of every 100 children under the age of 20 has Essential Tremor. That number is staggering, and represents a significant increase in the incidence of ET in children from even ten years ago.
Why is this campaign necessary?
· What would you do if your voice quivered so much that you aren't able to speak or you can barely speak?
· What would you do if your head constantly shakes yes or no?
· What would you do if every time you try to eat and food flies from your fork or spoon, and your drink will splash on you and everyone at the table?
· What would you do if you couldn't prepare your own food?
· What would you do if every night the inside of your body quivers as you try to fall asleep?
· What would you do if you couldn't sign your name, and if you try to fill out a form because your hand tremors like a baby bird's wings flapping, and then no one can read what you write?
· What would you do if your legs tremor and you wobble when you walk?
· What would you do if you couldn't play with your children or help them with school projects because your hand shakes?
· What would you do if you were afraid to hold your newborn baby?
· What would you do if you’re a teenager and because your hands flutter in class you're teased and bullied?
· What would you do if you’re a teenager and your dreams of becoming a carpenter, artist, pianist, doctor, nurse or dentist will never come true because of your tremors?
· What if you aren’t able to apply makeup, put in your contact lens, or shave.
· What would you do if you couldn't put on jewelry? (necklace or earrings)
· What would you do if you are a young child and can’t copy your ABC’s or make crafts like the other kids in your class?
· What would you do if you’re a musician, singer, or artist and your life of playing an instrument, singing or painting abruptly stops?
· What would you do if you were fired from your job because your boss doesn't like to see you tremor, even though you can still do your job?
· What would you do if you couldn't drive a car?
Where does the money go?
Diann Shaddox Foundation for Essential Tremor Programs
ET Medical Research Program
Family Assistance Program
Go to www.diannshaddoxfoundation.org