This is our son James! He was born was a complex heart defect known as Hypoplastic Left Heart Syndrome. When we found out that our baby boy would be born with this life threatening condition, we packed up and moved to Cincinnati to be close to the Cincinnati Children's Hopsital for his care.
When we moved to Ohio, I reached out to the PCHA to build support from families who were going through a similar journey. We are so grateful for this group of people who truly care about what your going through and your child's well-being.
Sadly, our son James passed away from his heart defect after 6 short weeks but the support from the PCHA never stopped. We have continued to be involved because we want to be that support system for another family who is walking that path.
The Pediatric Congenital Heart Association’s mission is to “Conquer Congenital Heart Disease.” We are accomplishing this through collaboration with patients, parents, providers, and partner organizations to improve quality and outcomes through CHD education, support, research and awareness.
The PCHA-OH chapter is a program of PCHA, aimed at improving the lives of those with congenital heart disease and their families through direct support and education – meeting families where they are. Your donation helps support our CHD kit program which provides important educational resources to families when they need them most. Funds raised from the 2019 Conquering CHD Walk will provide inpatient dinners and holiday parties, social outings, advocacy conferences, and medical research grants to local doctors and researchers.
Thank you for your support!