Isabella's Motto: "You Go Girl"
VIP Advocate: April Braun
Uplifted by: Marmon Power Productions & Austin Tea Xchange
Supported by: Lake Travis Theater
Isabella was born healthy. At 6 months old she began having seizures and had several hospitalizations through her first 4 years of like. Eventually doctors recommended a temporal lobe resection at the age of 4. This led to complications, resulting in an MRSA infection. After the infection, it took over 2 years for her to regain speech and mobility. She continued to have daily seizures until 3 years ago, when we found out that she had a genetic form of epilepsy PCDH19.
Isabella is currently trying a version of a Modified Atkins diet. We have participated in sharing our medical records for research with the PCDH19 alliance. We have also done additional treatments which include (VNS (Vagus Nerve Stimulation), ablation surgery, and Epidiolox (FDA approved CBD prescribed by a doctor).
Isabella has a strong family and church network. She also has a network of support associated with genetic disease. Despite her challenges, she loves to dance and act. She participates in a yearly dance program where they accommodate the performances to allow her to participate. She loves to cook and color and draw. She also likes to swim and enjoys caring for others and watching cooking videos.
All funds raised by each Champion Child's page will support all CC4C families.