Our Mom, Florentina Siruno, suffered from Multiple System Atrophy of the Cerebellum.
MSA is a rare and fatal degenerative neurologic disorder. It is similar to parkinsonism but with more widespread effects on the brain and body. It affects both men and women and usually starts in the 50's or early 60's. The cause of MSA is unclear and there are no known risk factors. At this time, there are no specific symptoms, blood tests, or imaging studies that definitely diagnose MSA and there is no cure. The prognosis for this disease is poor with most patients passing away from the disease or its complications within 6 years of the diagnosis. Florentina's fight lasted for 9 years.
The MSA coalition is focused on facilitating and funding MSA research. We ask that donations are made in honor of Florentina's memory to aid in the discovery of a cure for this devastating disease.