My mother, Carol Werner, was formally diagnosed with Multiple System Atrophy in 2010, although she demonstrated symptoms for some time before that. Multiple System Atrophy (MSA) is a neurodegenerative illness, often referred to as Atypical Parkinson's or Parkinsonism Disease and formerly called Shy-Drager syndrome. It usually results in death or serious disability within 7 to 10 years. This dreadful disease, so rare and yet so devastating, slowly and progressively takes away the ability to walk, talk, swallow, and breathe. There is no effective treatment and there is no cure.
On May 8th, 2018, my dear mother lost her courageous fight against this horrific disease. In her honor, I will work diligently, along with the MSA community and board members, to raise money for research to find a cure so that no one and no family will have to endure this awful disease, and because a breakthrough here could also help others with Parkinson's as well as other neurodegenerative illnesses. Please help - every penny counts!
The MSA Coalition first began in 1989 when a toll-free support line was installed at the home of an experienced MSA caregiver. Today families around the world can seek support through an extensive global online community. HELPING FAMILIES COPE by OFFERING SUPPORT AND COMFORT and alleviating feelings of confusion and isolation drives our continued efforts to develop and maintain programs to support, educate, advocate and fund research.
The Multiple System Atrophy Coalition is LEADING THE FIGHT TO CURE MULTIPLE SYSTEM ATROPHY while providing COMPASSIONATE SUPPORT and INFORMATIVE RESOURCES to benefit families affected by this serious, progressively disabling, neurodegenerative disease.
As the LEADING NONPROFIT FUNDER OF MSA RESEARCH, the MSA Coalition has a GLOBALLY FOCUSED RESEARCH STRATEGY to seek the most innovative and best ideas while FACILITATING COLLABORATIVE RESEARCH PROJECTS among world class institutions: SPEEDING THE WAY TO A CURE!
Please consider supporting the Multiple System Atrophy Coalition, a 501c3 dedicated to awareness, education, patient resources, and most importantly, to the ongoing race to find the cure.
Thank you for your support!