Join the I Heart Someone Rare Challenge in honor of Rare Disease Month this February.
Cure JM families are coming together to raise $50,000 before Rare Disease Day on February 29th.
Like most rare diseases, Juvenile Myositis research is funded almost entirely from grassroots efforts, like this fundraiser.
Every single dollar makes a difference.
When a child is diagnosed with Juvenile Myositis, their young life is turned upside down. This life-threatening disease changes everything. It can attack any system of the body. The child faces a body fighting itself.
There are no FDA-approved treatments.
There is no cure....yet.
Imagine a child watching with envy while other kids do things that they can’t do. Imagine missing out on a normal childhood because of hospital visits, treatments, and side effects. Imagine living in fear of the sun.
Imagine a child asking, “why me?”
None of us would ever wish that on a child.
We’re not powerless. During Rare Disease Month, we can help.
You can give these kids hope. Hope for better treatments. Hope for a normal childhood. Hope for a brighter future. Hope for a cure.
Cure JM has made extraordinary progress in Juvenile Myositis research and programs, but there’s so much left to do. Cure JM’s Strategic Research Plan calls for substantial new investments to identify and understand the genes that cause Juvenile Myositis; new support for drug discovery and funds to get those advanced treatments to the children that need them.
We can accomplish these goals, but we need to take action.
Thank you. Your support gives families the hope and strength to keep on fighting.